Please find below information and links to websites which you may find useful.
This website aims to provide emotional support to parents and carers of children with special needs. Many parents of disabled children or children with special needs face additional associated challenges in practical, physical and emotional terms. Sometimes when life doesn’t follow an expected, mainstream, non-disabled path it can make you feel isolated and like you’re the only one going through certain emotions and experiences. The aim of these pages is to provide a virtual home for parents and carers to realise you are not alone. There are many other families also going through similar experiences and feeling similar complex emotions. Some of the thoughts and experiences of other families are included under words of wisdom. There is information under professional support listing organisations and counsellors, psychotherapists and psychologists who can provide further emotional support if necessary. Please visit the website Affinity Hub
This toolkit aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services. This toolkit aims to unpick these problems and to develop effective strategies for resolving them. Please visit the website here
Together for Short Lives is a leading UK charity that speaks out for all children and young people who are expected to have short lives. Together with everyone who provides care and support to these children and families, the charity is there to help them have as fulfilling lives as possible and the very best care at the end of life. The website can be found here
It can be a very worrying time for parents and carers as their child moves from familiar children’s services to new adult services and is expected to take on decision-making responsibility for themselves. This factsheet from Together for Short lives aims to help parents to think about the different elements of transition that need to be planned for and to provide tips to help the process feel as smooth as possible.
This website contains useful advice and guidance for families, as well as things to do in Gloucestershire and its surrounds. Glosfamilies send out a regular newsletter which is interesting and informative. You can access the website here and sign up to receive their newsletter.
IPSEA is an independent charity covering the whole of England which offers an information service, advice line, tribunal helpline and tribunal support. The IPSEA website contains helpful model letters, FAQs, a jargon buster and much more. The website can be visited here
This website is co-produced and inspired by those who have experienced decision making within health and welfare settings and felt unprepared or challenged without such guidance. The website is aimed at those new to making Best Interest Decisions and especially those caring for a young person in transition to adult services. The website can be found here
The Council for Disabled Children (CDC) is the umbrella body for the disabled children’s sector in England, with links to other UK nations. It is a national body that brings together the diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice. The website can be found here
This website shows the EHC process from the perspective of families and aims to support areas to improve local services. Please visit the website EHCP Journeys
Gloucestershire Family Information Service (FIS) advisors give impartial information on childcare, finances, parenting and education. They support families, children and young people aged 0- 19 years of age (25 for young people with additional needs) and professionals working with these families. The website can be found here
The National Development Team for Inclusion (NDTi) is a not for profit organisation working to enable people at risk of exclusion, due to age or disability, to live the life they choose. They inspire and support policymakers, services and communities to make change happen – change that leads to better lives.
St Rose’s aims to provide a broad and balanced curriculum that offers stimulating opportunities appropriate to the needs of our students.
A team of experienced therapists are employed directly by the school to work alongside education and care staff. Collaborative therapy and sharing that knowledge is integral to the work of our school.
When a child or young person is happy, they have the best chance of progressing and achieving their goals. Ensuring that your child’s emotional needs are met is as important as their physical requirements.